Happy birthday, TEFCA

The ideas and innovators shaping health care
Jan 13, 2025 View in browser
 
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By Ruth Reader and Erin Schumaker

CHECKUP

MIAMI BEACH, FL - FEBRUARY 16:  Dr. Klara Gershman, MD, uses a laptop computer to enter information about her patient, Doniel Adivi, on February 16, 2010 in Miami Beach, Florida.  Dr. Gershman is starting the process of shifting her office to a computer system that will store the information of her patients as South Florida is set to receive $8.5 million in federal stimulus money to help doctors and   other healthcare providers convert to electronic record keeping. The Obama administration included electronic record keeping in the stimulus package as they see it as one way to help control costs around the nation in the health care business. (Photo by Joe Raedle/Getty Images)

HHS’s information highway aims to help health systems share patient data with one another. | Getty Images

Just over a year ago, the Department of Health and Human Services launched an information highway to instantly deliver patient data across health systems and give doctors more complete patient health histories.

Since then, a growing list of health systems, payers and others have connected to the Trusted Exchange Framework and Common Agreement, known as TEFCA.

The electronic health records company Epic Systems, which covers 89 percent of acute care hospitals in the U.S., has connected more than 500 health systems to the network and plans to connect all its customers by the end of 2025.

Epic has one of seven Qualified Health Information Networks, or QHINs, hooking doctors and others into the network. The Indian Health Service has also joined TEFCA.

What does that mean? It’s too early to see much of an effect, says Dr. David Kaelber, a pediatrician and chief informatics officer at the Ohio-based critical access hospital MetroHealth.

But TEFCA will eventually expand both the sources from which doctors can retrieve patient data and the depth of patient information.

For now, obtaining a patient’s information from other health systems can be a dodgy process. “Patients assume that, as a doctor, I know all of their information,” Kaebler told Ruth. “What they don’t understand is a lot of times I don’t even have access to it.”

He offers an example: He can’t access pre-2019 information about a 40-year-old patient because the state health information exchange provides data from only the past few years. With wider adoption of TEFCA, he could get much fuller patient records.

What’s next: Kaelber says the biggest promise TEFCA offers is not just getting more information about patients’ past medical care, but also having the ability to incorporate new data sources into their care.

Now, he can’t easily retrieve information from community behavioral health centers, nursing homes or dentist offices.

Social service agencies, for example, maintain valuable patient data that provides insight into their health, such socioeconomic status or health care access, that could be shared more widely. “Information exchange there is not as robust as I think it could be if the vision for TEFCA is fully realized,” Kaelber said.

WELCOME TO FUTURE PULSE

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This is where we explore the ideas and innovators shaping health care.

Some AI models can tell if you look younger than your age — and what that means for your health, the Wall Street Journal reports.

Share any thoughts, news, tips and feedback with Carmen Paun at cpaun@politico.com, Daniel Payne at dpayne@politico.com, Ruth Reader at rreader@politico.com, or Erin Schumaker at eschumaker@politico.com.

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SAFETY CHECK

A plaque of the Department of Defense seal

The DOD is running tests on tests on AI-backed military medicine chatbots. | Mandel Ngan/AFP via Getty Images

The Department of Defense is testing artificial intelligence-fueled military medicine chatbots for weaknesses. In collaboration with the tech nonprofit Humane Intelligence, the DOD recently finished a pilot program evaluating large language model chatbots that summarize clinical notes and give medical advice. More than 200 people, including clinical providers and health care analysts, participated in the pilot, which compared three popular models.

The results: The AI assurance pilot found more than 800 potential vulnerabilities and biases in the military medicine chatbots tested.

Why it matters: “This program acts as an essential pathfinder for generating a mass of testing data, surfacing areas for consideration, and validating mitigation options that will shape future research, development, and assurance of GenAI systems that may be deployed in the future," Matthew Johnson, who leads the responsible AI division of the DOD's Chief Digital and Artificial Intelligence Office, said in a statement.

WASHINGTON WATCH

National Institutes of Health Director Monica Bertagnolli gives an interview in her office at NIH headquarters in Bethesda, Md., Feb. 21, 2024. (Francis Chung/POLITICO via AP Images)

NIH Director Monica Bertagnolli advised the agency review board to critically examine GOP overhaul plans. | AP

In her parting words to the National Institutes of Health’s scientific management review board on Friday, Director Monica Bertagnolli advised the group of scholars and top government health officials to carefully examine plans in Congress to overhaul how the agency awards billions in health care research funding.

The advisers shouldn’t believe as fact claims from eager GOP lawmakers seeking NIH restructuring and increased oversight nor automatically accept the premise of Congress’ recommendations, she cautioned.

“You dive in and decide,” Bertagnolli advised the group. Congress created the board in the 2006 NIH Reform Act, charging it with reviewing the agency’s structure and research portfolio and making recommendations to the NIH director.

The board fell dormant under former NIH Director Francis Collins, sparking criticism from House and Senate Republicans interested in increasing NIH oversight and a directive in the 2024 omnibus appropriations law to restart it.

Reviving the review board was a key part of the GOP proposals to overhaul the NIH released last year by Sen. Bill Cassidy (R-La.), then-ranking member of the Senate Health, Education, Labor and Pensions Committee, and Rep. Cathy McMorris Rodgers (R-Wash.), then-chair of the House Energy and Commerce Committee.

Rodgers also proposed imposing five-year term limits for NIH directors who oversee key research areas and consolidating the agency’s 27 centers to 15.

Bertagnolli described the board, which includes both NIH institute and center heads and non-government members, as a chance to offer outside perspective to Congress on its overhaul proposals.

“This is an opportunity for us to respond to Congress by having a very careful thought process with you all from the external community, so that it's not just me writing a letter back to Congress saying, ‘Well, no, I don’t think what you asked us to do is such a good idea,’” Bertagnolli said.

Even so: The board has no power to affect Congress’ plans beyond offering advice, and its future is unclear. While Republicans advocated for reviving the board, Robert F. Kennedy Jr., President-elect Donald Trump’s choice to lead the Department of Health and Human Services, could replace its members with his own picks.

What’s next: Republicans are in a better position to advance their plans now that they control Congress and the White House, but Democrats retain the ability to block legislation in the Senate when 60 votes are required.

And GOP plans could change, Bertagnolli noted. “These recommendations came from a different Congress under a different administration,” she said.

Rodgers retired after the last Congress, though Rep. Robert Aderholt (R-Ala.), chair of the Appropriations Committee panel that sets the NIH budget, backed her proposal and remains atop the panel. Cassidy has more power to advance his plan now that he’s chair of Senate HELP.

Trump has tapped Stanford University economist Jay Bhattacharya to replace Bertagnolli at NIH.

 

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